This website is intended for US residents.
See how EKTERLY made a difference for people with hereditary angioedema (HAE) as well as
their caregivers. If EKTERLY is part of your treatment journey, you may have the opportunity to
share your story below.
Use this filter to quickly find stories relevant to you.
With an active, on-the-go lifestyle, Cari wanted an on-demand option that could keep up.
Watch Cari's Story
After life-threatening throat attacks, Zach wanted an oral on-demand treatment.
Watch Zach's Story
As a mom of Ellis, a teen with HAE, Hortencia wanted an on-demand option on hand.
Watch Their Story
Mistie lived with attacks for years before learning she had HAE with normal C1-inhibitor. Now, she finally has answers.
Watch Mistie's Story
Even with preventive treatment, Karen experienced breakthrough attacks. See the importance of an on-demand treatment.
Watch Karen's Story
After years of unexplained swelling, Jason was diagnosed with HAE. Now he can treat when symptoms begin.
Watch Jason's StoryNo patient profiles match the selected category.
Cari has lived with HAE since childhood, but one moment changed everything—an attack that came just after the birth of her son. In her story, she shares how years of uncertainty shaped her life, and how finding an on-demand oral option like EKTERLY became part of moving forward with confidence.
"For me, being able to stop the progression of an attack with an oral, on-demand medication has been a game-changer."
Even with preventive treatment, Karen experienced breakthrough attacks. See the importance of an on-demand treatment.
Watch Karen's Story
As a mom of Ellis, a teen with HAE, Hortencia wanted an on-demand option on hand.
Watch Their Story
Mistie lived with attacks for years before learning she had HAE with normal C1-inhibitor. Now, she finally has answers.
Watch Mistie's StoryFor most of his life, Zach lived with the fear that a simple, everyday moment could trigger a life-threatening HAE attack. After years of emergency room visits, injections, missed milestones, and the fear of another laryngeal attack, Zach learned about EKTERLY, and found an on-the-go approach for managing his HAE.
"That first treatment with EKTERLY gave me such confidence that I can treat an attack no matter where I am."
As a mom of Ellis, a teen with HAE, Hortencia wanted an on-demand option on hand.
Watch Their Story
After years of unexplained swelling, Jason was diagnosed with HAE. Now he can treat when symptoms begin.
Watch Jason's Story
Mistie lived with attacks for years before learning she had HAE with normal C1-inhibitor. Now, she finally has answers.
Watch Mistie's StoryEllis, a 13-year-old living with HAE, experienced years of recurrent attacks before receiving a diagnosis. Guided by his mother Hortencia's advocacy and vigilance, their journey reflects the essential role caregivers play in early recognition, care navigation, and ensuring timely access to on-demand treatment.
"What I was really looking for was something I simply had confidence in."
–Hortencia
With an active, on-the-go lifestyle, Cari wanted an on-demand option that could keep up.
Watch Cari's Story
Mistie lived with attacks for years before learning she had HAE with normal C1-inhibitor. Now, she finally has answers.
Watch Mistie's Story
Even with preventive treatment, Karen experienced breakthrough attacks. See the importance of an on-demand treatment.
Watch Karen's StoryAfter years of unexplained swelling, abdominal attacks, misdiagnoses, and even unnecessary surgeries, Mistie finally learned she had Type III, also known as HAE with normal C1-inhibitor. Although getting answers was a turning point, severe attacks continued to shape her daily life, reinforcing how important it was to have an on-demand treatment option like EKTERLY available when symptoms begin.
"For me, EKTERLY has given me
back parts of myself I didn't
know
I had lost."
With an active, on-the-go lifestyle, Cari wanted an on-demand option that could keep up.
Watch Cari's Story
As a mom of Ellis, a teen with HAE, Hortencia wanted an on-demand option on hand.
Watch Their Story
After life-threatening throat attacks, Zach wanted an oral on-demand treatment.
Watch Zach's StoryAfter more than 25 years of unexplained symptoms, Karen finally received a diagnosis of HAE. Preventive treatment helped reduce her attacks, but breakthrough episodes still occurred—reinforcing the importance of having an on-demand treatment like EKTERLY available when symptoms begin.
"Knowing I have an on-demand option I feel comfortable using and that fits into my life has made everyday activities feel manageable."
With an active, on-the-go lifestyle, Cari wanted an on-demand option that could keep up.
Watch Cari's Story
As a mom of Ellis, a teen with HAE, Hortencia wanted an on-demand option on hand.
Watch Their Story
Mistie lived with attacks for years before learning she had HAE with normal C1-inhibitor. Now, she finally has answers.
Watch Mistie's StoryAfter years of unexplained swelling and a frightening throat attack, Jason was diagnosed with HAE and began to better understand the symptoms he had been living with for years. While preventive treatment helped reduce the frequency of attacks, having an on-demand option like EKTERLY available became an important part of feeling ready to treat when symptoms begin.
"With EKTERLY, I've felt more confident in how I treat my attacks as they come up."
After life-threatening throat attacks, Zach wanted an oral on-demand treatment.
Watch Zach's Story
As a mom of Ellis, a teen with HAE, Hortencia wanted an on-demand option on hand.
Watch Their Story
Mistie lived with attacks for years before learning she had HAE with normal C1-inhibitor. Now, she finally has answers.
Watch Mistie's StoryIndividual results may vary. Patients have been compensated for their time.
If you use EKTERLY for your on-demand HAE treatment and you’re interested in potentially becoming an ambassador, we'd love to hear from you!
Fill out the form below and we’ll be in touch.
EKTERLY is a prescription medicine used to treat sudden (acute) attacks of hereditary angioedema (HAE) in adults and children aged 12 years of age and older. It is not known if EKTERLY is safe and effective in children under 12 years of age.
Before taking EKTERLY, tell your healthcare provider about all of your medical conditions, including if you:
Tell your healthcare provider about all of the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. Taking EKTERLY with certain other medicines can cause side effects or affect how well EKTERLY or the other medicines work. Especially tell your healthcare provider if you take any of the following, as their use with EKTERLY is not recommended: itraconazole, phenytoin, efavirenz.
Know the medicines you take. Keep a list of them to show your healthcare provider or pharmacist when you get a new medicine.
The most common side effects of EKTERLY include headache. For more information, ask your healthcare provider or pharmacist. Talk to your doctor for medical advice about side effects.
You are encouraged to report side effects related to KalVista products by calling 1-855-258-4782. If you prefer, you may contact the U.S. Food and Drug Administration (FDA) directly. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.
Please click here for full Prescribing Information, including Patient Information.
